One amazing story that many people should read!
Stubborn, strong, resilient, annoyingly positive and ridiculously outspoken; all adjectives people have used to describe me. Are these compliments? It depends who you ask. I do know these characteristics have helped me through my darkest and brightest days living with scleroderma.
In 1985, after two years of misdiagnosing my symptoms, I was diagnosed with scleroderma at the ripe old age of ten. This was long before you could Google anything you wanted to learn about on the Internet. Growing up, all I knew about scleroderma was what my mom had told me, which was that my skin was tighter than most people’s. She did not tell me that I would develop telangiectasias all over my body, that my limbs would become mangled and deformed, or that my fingers and elbows would leak calcium. I discovered these cool party tricks for myself.
In 1993, while home on spring vacation my freshman…
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